During this time of celebration, we also remember and acknowledge those we have lost to epilepsy related causes, including sudden unexpected death in epilepsy (SUDEP). Each year, more than 1 in 1,000 adults and 1 in 4,500 children with epilepsy die from SUDEP. If seizures are uncontrolled, the risk increases to more than 1 out of 150. SUDEP is the leading cause of death for people with uncontrolled seizures. Other causes of death include accidents, suicide, underlying causes like brain tumors, or newonset refractory status epilepticus. If you have lost a loved one to epilepsy, the SUDEP Institute along with the Danny Did Foundation would like to help you remember them at the #EpilepsyWalk on our Remembrance Wall. You can honor your loved one by providing a picture and information we can place on a memorial flag. Whether you are attending in person, virtually, or in spirit, we want to remember all loved ones lost to epilepsy on this special day.
To have your loved one included, please send the name of the person you wish to recognize, a photo, and a message of 85 words or less to SUDEP@efa.org before March 31, 2019.